August 24 was a day of shock. Marielle, Blake and I went to the hospital just for a regular check up. But because Marielle was having pre-term contractions, we were advised to be admitted instantly. Marielle almost gave birth that day but the doctors were able to delay it for a week.
August 31 was a day of great joy. Paige Emmanuelle was born. She was very beautiful and strong despite being 2 weeks pre-mature. A month prior, the doctors saw through ultra sound that she had dilated bowels. They told us the possible sicknesses, all of which could be treated. But on the day of birth, Paige scored high on a health test they give to babies and showed no signs of sickness.
Then came September 1. It was a kill-joy day. That morning, as we were filled with joy and excitement of having Paige with us in the room, we received news that through some x-rays done, they did see an obstruction in her intestines, one that did require surgery.
I lost count of the days since…
My baby girl who seemed strong going under the knife?!?
Prayers were prayed. Tears flowed and overflowed. The uncertainty became a pain until the certain came. And the certain only got worse.
After almost a week, the diagnosis was clear. Neuro Intestinal Displacia. A rare disease that makes it challenging for our daughter to absorb nutrients and digest her food. A disease that could cause death. Not even surgery and medicine can instantly cure. We were devastated to say the least.
Questions, fears, sadness, shock were almost ever present.
We always ask God to teach us His ways, we’re taught to know His ways, to walk in His ways and to trust in His ways… But how can we even do all that at this point?
As I write this, I still have a struggle to understand God’s ways in this. How can this painful experience lead to something great and big? But through it all, God made me realize that His ways really can’t be understood at times, let alone easily accepted. The Bible even describes His ways to be higher than ours, something we may never fathom.
But His character can be known.
He is good, He is faithful, He is loving, He is kind, He is generous etc… Also, His abilities are made known… He is the Creator, He is a Healer, He is a Provider, He gives wisdom and understanding, He gives strength, and so much more…
God is teaching us to trust, to find rest, to have hope in His character even more.
In the last two days as of this writing, Paige has shown little signs of improvement. She has been able to pass some poop, to feed a little and finally weaned off her incubator. All these, little as they seem, are miracles. Doctors weren’t sure when or if these things would even happen at all. God has healed. Not in our desired pace, but healed nonetheless.
Paige is still at the NICU, but we still believe that God is good and great. We’re grateful for the prayers and support of our family and friends. Most of all, we are grateful to God for the miracle of healing, provision, and for the grace to encounter Him and be strengthened by Him in the midst of all this.
Please continue to journey with us in this season of stretching by including us in your prayers. We believe that what the enemy meant for evil, God will use for the good.
God is and will be glorified through this and we will endure by God’s grace.